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New film aims to raise awareness of rare disease cALD

pharmaphorum

Rare Disease Day saw the debut of a film that aims to raise awareness of cerebral adrenoleukodystrophy (cALD), a devastating and fatal condition with no pharmacological treatments available.

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Gaucher Disease Awareness Month highlights 'serious' unmet need from lack of neuronopathic therapies

Outsourcing Pharma

In the midst of International Gaucher Disease Awareness Month, GlobalData has highlighted a 'critical' issue within the Gaucher disease landscape: the significant lack of neuronopathic therapies.

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The urgent need for education and awareness about mitochondrial disease

pharmaphorum

Delayed diagnosis, misdiagnosis, and no cure or disease modifying treatments – children living with mitochondrial disease face all the issues often associated with rare diseases. In August 2011, they said it was a form of mitochondrial disease, but didn’t know what one at that point.

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Elsevier launches 'Year of the Zebra' campaign to spread awareness of rare diseases, partnering with YouTube Health

Fierce Healthcare

Elsevier launches 'Year of the Zebra' campaign to spread awareness of rare diseases, partnering with YouTube Health agliadkovskaya Tue, 03/07/2023 - 14:05

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Celebrating 40 years of the Orphan Drug Act on Rare Disease Day

PhRMA

For over a decade, Rare Disease Day has been celebrated on February 28 to raise awareness and generate change for the more than 30 million patients in the U.S. living with a rare disease.

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Protecting treatment advances for National Breast Cancer Awareness Month

PhRMA

Since the 1980s, October has been recognized as National Breast Cancer Awareness Month — an opportunity for us to unite as a community to honor those who have had breast cancer and raise awareness about progress biopharmaceutical researchers have made towards treating the disease.

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Star Power: Celebrity Endorsements in Public Health

Pharmacy Times

Celebrities, local advocates, patients, and pharmacists can effectively promote public health initiatives and raise disease awareness by authentically leveraging trusted relationships.

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