Understanding NF2: The Podcast Episode Shining a Light on a Rare Disease
NF2-Related Schwannomatosis is a rare condition that affects 1 in every 33,000 live births worldwide, leading to the development of noncancerous tumours in the nervous system, mainly in the brain and spinal cord. Despite its profound impact on those with NF2 and their families, NF2 remains largely unknown to the general public. That’s where our ‘Understanding NF2’ podcast steps in.
In this 26 minute episode, we delve into the complexities of NF2, breaking down the medical language to make it understandable to everyone. From the latest research and treatment options to personal stories of resilience and courage, the podcast offers a comprehensive look at the disease. Our mission is to foster a better understanding of NF2 and create a supportive community for those affected.
Understanding NF2 is more than just a podcast; it’s about the people. Their stories of struggle, hope and triumph are at the heart of this episode, offering inspiration and insight to our listeners.
We feature an expert in medical genetics, Gareth Evans, and a PhD student, Grace Gregory, currently researching new ways to reduce tumour growth in individuals with NF2.
Whether you’re someone living with NF2, a family member, a healthcare professional, or simply curious to learn about the rare and remarkable, our podcast is your gateway to a deeper understanding and connection with the NF2 community, offering insights, stories, and information that inspire, educate, and empower.
Watch the podcast on the UoM Faculty of Biology, Medicine and Health YouTube channel here: https://youtu.be/57BYRMiirIs?si=vhAlo-tnakOEi4TG
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This blog has been created as a way to share real stories, ideas, positivity and even sprinkle in some science. Everyone is welcome here and warmly encouraged to join us in contributing to our community through this blog. If you would like to add anything (anything at all!) then please contact Grace Gregory, at grace@nf2biosolutions.org or Joanne Ward (NF2 BioSolutions UK and Europe’s COO) at joanne@nf2bisolutions.org and we can pop it up on our blog. Watch this space and please join in helping us all connect and share with one another!
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