My name is James and I am 57 years of age. My NF2 story so far is that I had a tumour removed from my head on the right side successfully by surgery in January 2021. I struggle mentally sometimes to cope with my balance and hearing and get really annoyed with myself but most of the time I try to stay positive and focus on what I can achieve. I am having my 1st appointment with a psychologists at Guy’s Hospital Neurofibromatosis Clinic in the New Year and hoping that will help us to cope much better with living with NF2.
Merry Christmas and a Happy New year to all.
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This blog has been created as a way to share real stories, ideas, positivity and even sprinkle in some science. Everyone is welcome here and warmly encouraged to join us in contributing to our community through this blog. If you would like to add anything (anything at all!) then please contact myself, Grace Gregory, at grace@nf2biosolutions.org or Joanne Ward (NF2 BioSolutions UK and Europe’s COO) at joanne@nf2bisolutions.org and we can pop it up on our blog. Watch this space and please join in helping us all connect and share with one another!
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