This is the latest instalment of the Avastin Diaries Blog series. To read the previous article click the link below, or for the complete series head down to the bottom of this page for the full set of Avastin Diaries Blog links:
Avastin Diary 11 – Treatments 10-13 and The Summer Holidays
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[IMAGE DESCRIPTION] “There is a superhero in all of us, we just need the courage to put on the cape”
Treatment 14 – 21st September
After the last blog when I wrote about the Hospital Youth Services youth club, Oscar was invited to have a try out and I am happy to say that he loved it. We had a quick tour of things, it’s a big building with lots of rooms for different activities whatever takes the fancy. Games, crafting, pool tables, drama & productions, and a massive sports hall.
Oscar quickly made sure I left (not cool mum!!!) and enjoyed a couple of hours in the company of kids like him going through chronic illnesses, I am also glad to say they get a few treats along the way not just when attending but days out – in fact we are going to have to miss the next day out at Alton Towers Scarefest because we already have plans, but need to look out on their socials for upcoming things! We also have to fit youth club around Oscar’s football training because they fall on the same night at similar times!
Not much else to say about treatment this week, other than daycare was very quiet so we got sorted virtually straight away. We had the same Doctor (Dr Abba) as last week for cannulation (which went better than last week) and nurse Izzy was around for a few chats also.
Named Nurse Sam was around so she helped me complete my application to get Oscar a concessionary bus pass.
27th Sept sees our 6 month scan to see if the Avastin has been working and an updated hearing test. If the Avastin shows his tumours are stable, we shall continue but I am hoping to get 3 weeks between treatments.
Our picture today is a new sign in the Daycare Ward “There is a Superhero in all of us. We just need to the courage to put on the cape”
Next up – treatment 15 – Sponsored by Scanxiety
NB – Instead of having a cannula at every visit you can ask about having a port line – I explained this on the 1st blog
NB – If your little person does not like needles etc you can have numbing cream (EMLA) or spray which numbs the area before they insert the cannula
Thankyou to everyone who sent me information about side effects
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This blog has been created as a way to share real stories, ideas, positivity and even sprinkle in some science. Everyone is welcome here and warmly encouraged to join us in contributing to our community through this blog. If you would like to add anything (anything at all!) then please contact myself, Grace Gregory, at grace@nf2biosolutions.org or Joanne Ward (NF2 BioSolutions UK and Europe’s COO) at joanne@nf2bisolutions.org and we can pop it up on our blog. Watch this space and please join in helping us all connect and share with one another!
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THE COMPLETE AVASTIN DIARIES BLOG SERIES LINKS
Avastin Diary 2 – First Treatment
Avastin Diary 3 – Second Treatment
Avastin Diary 4 – Teamwork and Third Treatment
Avastin Diary 5 – Waiting, Trainees and 4th Treatment
Avastin Diary 6 – BSL Nurse and 5th Treatment
Avastin Diary 7 – Another Learning Curve 6th Treatment
Avastin Diary 8 – Vimto, Ice Cream and 7th Treatment
Avastin Diary 9 – Tough Week and 8th Treatment
Avastin Diary 10 – 9th Treatment and Mental Wellbeing Importance